This book is published by the association "Vivre avec une NMP", of which Karin Tourment-Leroux, former journalist and Mom, is President.
"Vivre avec une NMP" brings together patients, all with myeloproliferative neoplasia (essential thrombocythemia, Vaquez polycythemia and myelofibrosis), their families and people interested in these pathologies, as well as general practitioners and specialists concerned and/or interested in these 'rare' diseases. This book is sold in aid of the association.
"When children worry about their sick parents, explaining what 'MNPs' are, allows to help them manage the situation. This little book offers for the first time, a simple support for our patients to discuss these diseases with their young children."
Jean-Jacques Kiladjan, hematologist...
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